SUGGESTED ARTICLES, DOCUMENTARIES, & BOOKS!
TILT is dedicating this page to posting links
to articles, documentaries, and books that touch upon End-of-Life issues.
Articles:
THE IMPORTANCE OF LITTLE THINGS-AUSTIN AMERICAN STATESMAN ARTICLE, JUNE 23, 2018
https://www.mystatesman.com/lifestyles/austin-group-gives-people-hospice-one-last-wish-little-thing/xnvweyc6EmU51zR3qnrdAI/
"ZEN AND THE ART OF DYING WELL"
http://opinionator.blogs.nytimes.com/2015/08/14/zen-and-the-art-of-dying-well/?action=click&pgtype=Homepage&module=opinion-c-col-left-region®ion=opinion-c-col-left-region&WT.nav=opinion-c-col-left-region&_r=0
"CAN LIFE IN A NURSING HOME BE MADE UPLIFTING AND PURPOSEFUL?"
One young doctor in upstate New York thought so and he came up with a highly eccentric way of demonstrating it. In this extract from his book Being Mortal, Atul Gawande tells the story of Bill Thomas and his miraculous menagerie.
http://telegraph.co.uk/culture/books/11139446/Can-life-in-a-nursing-home-be-made-uplifting-and-purposeful.html
"DON'T GIVE UP ON THEM"
Book Review: "Being Mortal" by Atul Gawande
http://dontgiveuponthem.com/index.php/tag/dr-bill-thomas/
"THE CONVERSATION PROJECT": When it comes to end-of-life care, one conversation can make all the difference."
http://theconversationproject.org/
Documentaries:
"ALIVE INSIDE": A documentary showing the power of music as therapy to "awaken" those with severe Alzheimer's. Caregivers of those with severe Alzheimer's should make watching this documentary a top priority! It can be found on the website of the Alive Inside nonprofit.
http://aliveinside.org/
Books and Pamphlets:
"CULTURAL COMPETENCE IN CANCER CARE: A Health Care Professional's Passport" By Office of Minority Health Resources and Services Administration.
This is a pocket guide for caregivers to assist in the understanding and delivering of culturally sensitive care to racial/ethnic minorities, while not stimulating stereotypical thinking about a group to which health care professionals are providing services.
www.iccnetwork.org
"GONE FROM MY SIGHT -- The Dying Experience” By Barbara Karnes, RN
Besides being the the author of the aforementioned booklet, she has authored many other books and booklets on which many providers of end-of-life care rely: My Friend I Care, The Eleventh Hour, and A Time to Live.
Her book, The Final Act of Living, is used in universities, for hospice orientation of staff and volunteers and in end-of-life related areas, yet is also useful for any lay reader.
This pamphlet and others by her can be purchased in bulk at minimal cost on her website.
www.bkbooks.com
"WHEN DEATH IS NEAR -- A Caregiver's Guide" Created by Hospice of Santa Cruz County
This booklet is an excellent resource for educating caregivers about the dying process. Each section provides practical “What You Can Do” bullet points. Alternate title, When the Time Comes, available at no extra cost.
www.qolpublishing.com/booklets/when-death-is-near-alternate-title-when-the-time-comes/
"HARD CHOICES FOR LOVING PEOPLE –- CPR, Artificial Feeding, Comfort Care, and the Patient with a Life-Threatening Illness" . By Chaplain Hank Dunn
Chaplain Hank Dunn wrote this book to provide guidance to patients and their families who must face the ‘hard choices’ that come with end-of-life.
www.hankdunn.com